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Who we are
Beauden Brave was set up in May 2021 in loving memory of Beauden Philip Turnbull, by Beauden's Mummy (Magda) and Daddy (Richard). Beauden was born on the 25 February 2021, living for just 68 days. He spent his entire life on the Neonatal Intensive Care Unit (NICU) at the RVI in Newcastle upon Tyne (who care for sick and premature babies from across the North East and Cumbria). The staff there not only cared for him, they gave him a home.
As Beauden's parents we were supported wonderfully by the Tiny Lives Trust (the charity linked to NICU at the RVI) and the staff on NICU.
As Beauden Brave, we actively fundraise and encourage others to fundraise for the Tiny Lives Trust and the Beauden Brave Fund administered by the Newcastle Hospitals Charity. Anything raised by Beauden Brave is split evenly between the Tiny Lives Trust and the Beauden Brave Fund. Beauden Brave does not handle any money, all donations go directly to the Tiny Lives Trust and the Newcastle Hospitals Charity. The Beauden Brave Fund administered by the Newcastle Hospitals Charity is used to fund:
improving and delivering end of life care on NICU at the RVI in Newcastle upon Tyne;
improving and advancing the care for babies born with genetic conditions; and
improving and advancing the care for people with Myotonic Dystrophy (the rare genetic disorder that Beauden had).
Specifically in 2022 we are raising money to fund a role with the John Walton Muscular Dystrophy Research Centre that will design and deliver education to staff involved in the diagnosis and care of babies born with neuromuscular conditions, including Myotonic Dystrophy. Babies born with these rare conditions have unique and complex needs, some of which not all healthcare professionals may work with regularly. The aim of the role and education will be to support and prepare staff to care for babies with these conditions confidently and effectively.
Thank you for your support.
Beauden's Mummy and Daddy
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